Missing Out
Mind you, he totally understands absolutely everything said to him (except colors... we're working on colors). Thank. God. Since he doesn't have any words, it always surprises me when I say something like, "Luke sit down, take off your boots and socks and go put them in your hamper." and he does just that. It's like a silly magic trick. Tonight at dinner with my whole extended family I said, "Hey everyone, watch this... Luke, see how many pieces of pasta you can balance on your spoon." and he went and stacked 4 bowtie pastas on his spoon and said "YEAH!". Ok, so I didn't get the standing ovation for my son that I hoped for - I guess I just wanted everyone to know that my nonspeaking son has TALENT dammit. Real Talent. And, although he's like a prisoner in his own head, unable to speak, he is definitely a part of the conversation. He can relate. He can respond. And his non-biased mom, thinks that's a huge relief.
On the opposite end of the spectrum and on the opposite end of the life cycle, is my 96 year old grandmother. Nana. Nana can barely hear anymore. She "assumes" what people are saying to her based on what is going on around her but really, she has no idea what's being said. It's terrible. She feels secluded. She feels left out. She sees that people are laughing but has no idea why. She sees that people are looking to her for a response, but all she can do is smile and nod for fear that she'll respond inappropriately. She's tired of saying, "What?". She's tired of asking everyone to speak up or speak slower. She feels like an outsider. She's no longer a part of the conversation.
But she can speak. She still has all of her words. She certainly gets what she wants and if she doesn't, you'll hear about it! She loves to talk. Get her going, and she won't stop. She'll tell you about every morsel that she ate for breakfast, lunch, dinner and every snack in between. She'll tell you all of the gossip going on inside her assisted living home. She'll talk about her younger years, my mom, her dogs and her love for fashion. She'll rattle off the headlines from the news and the reviews of movies in the movie theater that she'll never see. Because she can't hear. She loves to talk. It's how she can communicate. It's how she can still feel a part of life. Like Luke, she's also stuck inside her own head. The world around her is listening and responding. But she's able to only be on one side. Talking.
Two different issues. One at the beginning of life. One at the end. Unable to speak. Unable to hear. Both frustrated, but both getting by. One with so much to look forward to. One missing how it once was. I have shed tears for both predicaments. I feel helpless with both of them. Wanting to help them but not having the power to really help. I wonder which is worse. Who feels more engaged? Who can interact better? I know, one doesn't know any better. He's too young to really know what he's missing. But his little mind aches with frustration just the same. His big tears, stomping feet and pounding fists tell me so. And my Nana is too tired to make a big deal out of her deafness but I know she hates missing out. I catch her shaking her head with sadness when she's missing out on the joy surrounding her.
So I give hugs. Big hugs. Because unlike most forms of communication, hugs don't require words or ears. And that makes us all feel better.
Monday, December 28, 2009 | | 5 Comments
A new kind of vacation
I am on vacation. The new kind of vacation. The kind with the kids. It probably should have a different name because vacation is not what it used to be. I remember vacation. Vacation was packing MY bags one night and heading for the airport the next morning coffee in hand, flipflops on my feet and a carry-on containing my bathing suit that I knew I'd immediately put on as soon as I arrived at my beachy destination. It was 7 days away from work, and away from hassle. I'd turn off my phone knowing no one could need me THAT badly. Vacation was waking up at 10, putting on my bathing suit and heading to the outdoor cabana for breakfast in the sand. Vacation was a massage at 3, nap at 4, drinks by the ocean at 6 and dinner at 8. Vacation was going to sleep at night flushed from the sun, buzzing from the wine and relaxed that there was no agenda for the next day.
I am on vacation. But not THAT kind of vacation. I am sitting as I write in a PITCH dark room. Hannah is asleep on a blow up mattress at the foot of my bed. Luke has been asleep since 7 so here is where I've been sitting since then. We needed TWO luggage carts to bring all of our stuff to our room. We are here for FOUR days. I actually lied to the bellhop and told him I had four kids. I packed That Much Stuff. I'm pretty sure I forgot some essentials for myself, but at least I brought thirty or so Matchbox cars, two baby dolls and anything Hannah could need to care for them, a doll double stroller, a tiara making kit for all of the cousins, pickup sticks, Tiddly Winks, three board games, swim goggles, and a soccer ball.
I am on vacation. That's what it's called even though I had dinner at 6:00 with 10 of my family members but I don't recall actually speaking to any of them because Luke was grabbing the knives from our table, and throwing food at the table next to us. Preventing any major injury took precedence over conversation. I know I ordered a glass of wine but I don't quite recall drinking it. I know a toast was given at the start of the meal by my parents who took us on this vacation but I don't recall clinking glasses with anyone since Luke was grabbing the stem of my glass as I went to lift it up. On my dinner plate was a piece of chicken, some rice and three Matchbox cars. Letting Luke drive the cars through my food kept him entertained so I was fine with that. It's his vacation too.
Hannah wore her most favorite new dress and a necklace to dinner and ate a huge ice cream sundae for dessert. She went swimming in the indoor pool for an hour right before dinner and will again when she first gets up before breakfast. Two of her most favorite girls in the world, who happen to be her cousins and she rarely gets to see, are down the hall. She'll see them before she's even dressed in the morning, will be with them all day tomorrow and will have a pajama party with them tomorrow night. She went to bed an hour later than usual. During that hour I lay in her blow up bed with her watching Lady and the Tramp on the portable DVD player. I told her an extra long, extra special good night story before her eyes shut for the night.
Luke will have unlimited beverages at his disposal. He'll get to eat french fries at every meal. He gets to see more than just mommy's face for 4 days in a row. He has MILES of open, vast hallways to run up and down. He has stairways galore to climb.
No, I won't sleep late. I won't read any books as I lounge by a pool. I won't be flushed from the sun or buzzed from drinks. I won't be going to bed past 10 on any night. I won't be dancing under any stars. No, that's not really what vacation is anymore. Vacation is better now (did I really just say that?). It has more meaning now. Vacation is now creating memories for my two little kids. Vacation is the excitement and sparks I see in their eyes as they wake up somewhere new and get to eat cereal in their bed out of the little boxes. Vacation is letting THEM stay out late. Letting THEM have chocolate milk at breakfast and dessert at lunch. Vacation is watching THEM let loose on the dance floor in their fancy clothes. Vacation is their laughter, their exuberance at all that is new in a place they've never been.
It's 10:00 and Tim is sound asleep next to me, snoring away. There's no TV and even if there was, I wouldn't be able to turn it on because Hannah is only feet away. But I'm on vacation. We've only been on this vacation for 8 hours but Hannah has already told me she's having the BEST time ever. The last words she said as she fell asleep were, "I can't wait until tomorrow."
And neither can I.
Saturday, December 26, 2009 | | 6 Comments
Wish upon a star
OK, I got my venting out of the way. I am now ready to write my "real" post. Sorry if my vent was out of left field or slightly not PC. I just had one of those afternoons... Ahem.
Wednesday, December 23, 2009 | | 4 Comments
Christmas Shmitsmas
Ok people. My holiday is now over so it's time to move on with the winter and remove yourselves from the stores. I have a vacation to get ready for and I do not need all of you crazed shoppers in my way as I buy my few vacation necessities. You're stealing my parking spots, you're taking my shopping carts, you're causing insane lines at the grocery stores and you're making returning my less than desirable gifts that I received for MY holiday, next to impossible. Even worse, because of the upcoming, somewhat of a big deal holiday, all of the stores are closed the day before I leave for vacation. This means far too much planning on my part. I don't pack three days ahead of time so I do not KNOW that I'll need more shampoo, warm socks, razors or hair ties until the day before I leave which just happens to be CHRISTMAS. I also do not enjoy cooking dinner the night before I leave for vacation because I like being waited on at a restaurant so I can relax after my bags are packed and I look forward to hitting the road in the morning. But this year, it's Christmas so my restaurants of choice will not be open to serve me. On top of that, I like to have playdates on the days that my kids are home from school but it just so happens that it's Christmas and none of my kids friends will be choosing having a playdate at my house over opening their gifts and celebrating with their families, which means I'm stuck at home, with nothing to do except be stuck at home. You would think that my kids have plenty to do at home with all of the gifts they received over the eight days of Chanukah but you see, Chanukah was finished just about a week ago and a week is plenty of time to become totally BORED of all of the new gifts. They are now OLD gifts and are not incentive enough to keep anyone excited about staying home without anywhere to go or anyone to play with.
Wednesday, December 23, 2009 | | 4 Comments
What did I do?
I had a ridiculously long, exhausting day and am left with very little energy to write a post tonight. So I'll just write this little anecdote that may make you laugh. Or cringe. Or never come back again. Or possibly all of the above. Whatever, it's one for the books and you're the lucky ones who get to read it. No need to comment... just try not to think less of me (or Hannah), ok?
Monday, December 21, 2009 | | 12 Comments
I'm a Super Hero
I had one of those mornings. It didn't start well. Luke who is normally the late sleeper awoke at 5:30 screaming and in turn woke up Hannah who came running into our room frenzied that he was crying and no one was getting him. (In my half asleep state I guess I was hoping he would scream himself back to sleep). He screamed and screamed and she whined and whined that he needed me and I should be getting him. I looked at him through half opened eyes in the monitor and saw that he was only minutes away from hurling himself over the edge of the crib so I sleepily hoisted myself out of bed, meandered down the dark hall behind worried Hannah and opened the door to screaming Luke's room. The door wasn't even fully ajar when I heard him squealing "Hi! Hi! Hi!". Far too excited for 5:37 am. I brought him back to my bed knowing full well that my squirmy son would sit for about 13 minutes of Wow Wow Wubbzy before he would flip onto his belly and start sliding his way feet first off the bed and make a bee line for the stairs ready for breakfast. "Cuddling" is not in his vocabulary. Neither is "Sitting Still" or "Relaxing".
Sunday, December 20, 2009 | | 12 Comments
By the Fire
As I cooked dinner tonight in the kitchen and Luke was doing all he could to pull the pan off the stove and Hannah sat crying on the floor because the onions were burning her eyes, I called for Tim and asked him to "save me" by lighting a fire in the living room fireplace. It would be the first fire of the year and I thought it would be an entertaining activity for the kids and the perfect complement to the first big snowfall of the winter. He took me up on my request and the kids skipped after him newspaper and kindling in hand.
Saturday, December 19, 2009 | | 7 Comments
Spare Time Reads
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What if…2 hours ago
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A Ninth Thing We Don't Know About You6 hours ago
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‘Cause This Is Thriller9 hours ago
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My Granny-fabulous Christmas Gifts16 hours ago
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I'd buy more flowers17 hours ago
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The Fugly Sweater22 hours ago
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Five for Fighting1 day ago
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Back To The Future1 day ago
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On vacation2 days ago
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Merry Hanukkah?5 days ago
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Merry Christmas!5 days ago
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Pressing Pause1 week ago
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Hope, winter, and Tufte1 week ago
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Name that scene!2 weeks ago
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{It's raining. It's pouring}5 weeks ago
